Resources and References

Hoffman, D. N., & Strand, G. R. (2024). ‘Sit down and thrash it out’: opportunities for expanding ethics consultation during conflict resolution in long-term care. The New Bioethics, 30(2), 152–162. https://doi.org/10.1080/20502877.2024.2330275

Hui D, Nooruddin Z, Didwaniya N, Dev R, De La Cruz M, Kim SH, Kwon JH, Hutchins R, Liem C, Bruera E. Concepts and definitions for "actively dying," "end of life," "terminally ill," "terminal care," and "transition of care": a systematic review. J Pain Symptom Manage. 2014 Jan;47(1):77-89

Palecek EJ, Teno JM, Casarett DJ, Hanson LC, Rhodes RL, Mitchell SL. Comfort feeding only: a proposal to bring clarity to decision-making regarding difficulty with eating for persons with advanced dementia. J Am Geriatr Soc. 2010 Mar;58(3):580-4. doi: 10.1111/j.1532-5415.2010.02740.x. PMID: 20398123; PMCID: PMC2872797.

Etzioni A. On a communitarian approach to bioethics. Theor Med Bioeth. 2011 Oct;32(5):363-74. doi: 10.1007/s11017-011-9187-8. PMID: 21822955.

Arias M. Default Surrogate Statutes. Bifocal. 2023 January-February 44(3):54-57. Downloaded on 12/9/2025 from https://www.americanbar.org/groups/law_aging/publications/bifocal/vol44/bifocal-vol-44-issue3/recent-updates-to-default-surrogate-statutes/

Chicoine B, Kirschner KL. Considering Dignity of Risk in the Care of People with Intellectual Disabilities: A Clinical Perspective. Perspect Biol Med. 2022;65(2):189-198. doi: 10.1353/pbm.2022.0014. PMID: 35938426.

Moye J, Stolzmann K, Auguste EJ, Cohen AB, Catlin CC, Sager ZS, Weiskittle RE, Woolverton CB, Connors HL, Sullivan JL. End-of-Life Care for Persons Under Guardianship. J Pain Symptom Manage. 2021 Jul;62(1):81-90.e2. doi: 10.1016/j.jpainsymman.2020.11.008. Epub 2020 Nov 16. PMID: 33212143; PMCID: PMC8124075.

Tsay AJ. The Internet, Ethics, and False Beliefs in Health Care. AMA J Ethics. 2018;20(11):E1003-1006. doi: 10.1001/amajethics.2018.1003.

Aghabarary M, Dehghan Nayeri N. Medical futility and its challenges: a review study. J Med Ethics Hist Med. 2016 Oct 20;9:11. PMID: 28050241; PMCID: PMC5203684.

DuVal G, Sartorius L, Clarridge B, Gensler G, Danis M. What triggers requests for ethics consultations? J Med Ethics. 2001 Apr;27 Suppl 1(Suppl 1):i24-9. doi: 10.1136/jme.27.suppl_1.i24. PMID: 11314608; PMCID: PMC1765539.

Finder, S.G., Bartlett, V.L. Clinical Ethics Consultations and the Necessity of NOT Meeting Expectations: I Never Promised You a Rose Garden. HEC Forum 36, 147–165 (2024). https://doi.org/10.1007/s10730-022-09496-6

Shkolnik, A., Botnick, L., Cooper, A., Finger, H., Hahn, S., Hand, I., Seigel, W., Sherman, R., Siegel, R. A., Suleman, N., & Wasserman, R. (2025). Nancy Neveloff Dubler and Communitarian Ethics at NYC Health + Hospitals. The Journal of Clinical Ethics, 36(4), 315–322. https://doi.org/10.1086/737389

Finger, H. J., Dury, C. A., Sansone, G. R., Rao, R. N., & Dubler, N. N. (2022). An Interdisciplinary Ethics Panel Approach to End-of-Life Decision Making for Unbefriended Nursing Home Residents. The Journal of Clinical Ethics, 33(2), 101–111. https://pubmed.ncbi.nlm.nih.gov/35731814/

American Geriatrics Society Ethics Committee and Clinical Practice and Models of Care Committee. American Geriatrics Society feeding tubes in advanced dementia position statement. J Am Geriatr Soc. 2014;62(8):1590-1593. doi:10.1111/jgs.12924
https://pubmed.ncbi.nlm.nih.gov/25039796/

Mitchell, S. L., Kiely, D. K., & Hamel, M. B. (2004). Dying with advanced dementia in the nursing home. Archives of internal medicine, 164(3), 321–326. https://doi.org/10.1001/archinte.164.3.321


ARTICLES BY THADDEUS POPE

Pope, Thaddeus Mason, "The Growing Power of Healthcare Ethics Committees Heightens Due Process Concerns" (2014). Faculty Scholarship. Paper 277.
Downloaded on 12/9/2025 at: http://open.mitchellhamline.edu/facsch/277

Pope TM. Medical Futility Laws Protect Surrogate Decision Makers by Constraining Clinicians and Hospitals. HEC Forum. 2025 Oct 15. doi: 10.1007/s10730-025-09564-7. Epub ahead of print. PMID: 41094337.

Wechkin HA, Menzel PT, Loggers ET, Macauley RC, Pope TM, Reagan PL, Quill TE. "Mr. Smith Has No Mealtimes": Minimal Comfort Feeding for Patients with Advanced Dementia. J Pain Symptom Manage. 2025 Feb;69(2):216-222. doi: 10.1016/j.jpainsymman.2024.11.001. Epub 2024 Nov 13. PMID: 39542408.

 

ADDITIONAL ARTICLES ON CLINICAL ETHICS IN PALTC AND IN JAMDA

Hayley DC, Cassel CK, Snyder L, Rudberg MA. Ethical and legal issues in nursing home care. Arch Intern Med. 1996 Feb 12;156(3):249-56. PMID: 8572834.

Magelssen M, Karlsen H. Clinical ethics committees in nursing homes: what good can they do? Analysis of a single case consultation. Nurs Ethics. 2022 Feb;29(1):94-103. doi: 10.1177/09697330211003269. Epub 2021 Jul 13. PMID: 34254541; PMCID: PMC8866748.

Crico C, Sanchini V, Casali PG, Pravettoni G. Evaluating the effectiveness of clinical ethics committees: a systematic review. Med Health Care Philos. 2021 Mar;24(1):135-151. doi: 10.1007/s11019-020-09986-9. Epub 2020 Nov 21. PMID: 33219898; PMCID: PMC7910230.

Bollig G, Schmidt G, Rosland JH, Heller A. Ethical challenges in nursing homes--staff's opinions and experiences with systematic ethics meetings with participation of residents' relatives. Scand J Caring Sci. 2015 Dec;29(4):810-23. doi: 10.1111/scs.12213. Epub 2015 Apr 28. PMID: 25918868.

Holmes AL, Bugeja L, Ibrahim JE. Role of a Clinical Ethics Committee in Residential Aged Long-Term Care Settings: A Systematic Review. J Am Med Dir Assoc. 2020 Dec;21(12):1852-1861.e8. doi: 10.1016/j.jamda.2020.05.053. Epub 2020 Jul 28. PMID: 32736991.

Coers DO, Sizoo EM, Bloemen M, de Boer ME, van der Heide A, Hertogh CMPM, Leget CJW, Hoekstra T, Smalbrugge M. Navigating Dilemmas on Advance Euthanasia Directives of Patients with Advanced Dementia. J Am Med Dir Assoc. 2024 Dec;25(12):105300. doi: 10.1016/j.jamda.2024.105300. Epub 2024 Oct 10. PMID: 39396808.

Solaiman B. Legal and Ethical Considerations of Artificial Intelligence for Residents in Post-Acute and Long-Term Care. J Am Med Dir Assoc. 2024 Sep;25(9):105105. doi: 10.1016/j.jamda.2024.105105. Epub 2024 Jun 21. PMID: 38909630.

Sams RW 2nd, Jaggard P. A Moratorium on the Euphemism MAID. J Am Med Dir Assoc. 2024 Jun;25(6):105004. doi: 10.1016/j.jamda.2024.03.115. Epub 2024 Apr 24. PMID: 38677319.

Schoene-Seifert B, Uerpmann AL, Gerß J, Herr D. Advance (Meta-) Directives for Patients with Dementia who Appear Content: Learning from a Nationwide Survey. J Am Med Dir Assoc. 2016 Apr 1;17(4):294-9. doi: 10.1016/j.jamda.2016.01.014. Epub 2016 Feb 26. PMID: 26922808.

Ganzini L, Volicer L, Nelson WA, Fox E, Derse AR. Ten myths about decision-making capacity. J Am Med Dir Assoc. 2005 May-Jun;6(3 Suppl):S100-4. doi: 10.1016/j.jamda.2005.03.021. PMID: 15890283.